Health leaders call for stronger action on sickle cell in Nigeria
Health experts and researchers are urging immediate, coordinated efforts to tackle the rising burden of sickle cell disease in Nigeria and Sub-Saharan Africa. Professor Hakeem Fawehinmi and other stakeholders highlighted the urgent need for improved care, research, and local ownership of interventions. Shiva M’ovul-Kondoun shared her personal experience, stressing the devastating impact of inadequate care. The meeting brought together local and international partners to discuss solutions and emphasize patient-focused approaches.
Highlights
- Professor Hakeem Fawehinmi noted that Nigeria has one of the highest global burdens of sickle cell disease, with about 150,000 children born annually with the condition.
- The PACTS programme, involving researchers like Prof Imelda Bates, has focused on patient needs and sustainable, community-driven solutions.
- Shiva M’ovul-Kondoun shared her story of losing six siblings to sickle cell disease and called for more local ownership of interventions.
- Prof Obiageli Nnodu explained that the consortium is assessing care delivery for about 300 patients across six health facilities in the Federal Capital Territory.
- Stigma, lack of access, and inadequate management systems remain major barriers, but ongoing awareness and research efforts aim to improve outcomes for affected families.
